Man, can’t catch a break. White cell count and neutrophils haven’t changed. Teri’s had Neupogen shots the last two days and will get them again tomorrow to try and get those going, and the bone pain has already started from those. Trying to keep that under control, it’s not too bad so far. She’ll get the blood testing done again next Tuesday to see if they’re coming around. The doctor was recommending that she stay home as much as possible to reduce chance of any infections. See, this is where unvaccinated people really scare the shit out of me. Herd immunity is a real thing, people, and opting out of that social contract is directly impacting us at this point. Most of you already know my stance on vaccinations and the anti-vax crowd, so I’m not going into that here. But this is real life now, and it’s important.
I’m going to try to change topic over the next few days so I’m not as much of a downer. Not expecting much to happen at the homefront, Teri will get shots tomorrow and we wait until Tuesday to find out how it’s going. So no use dwelling on it, but it’s been rough this week so my posts have really be focusing on that. I’ll have some more fun things to talk about, I promise 🙂
Once my Xanax kicks in, that is…
So Teri’s been off the study drugs for about 3 weeks now. Was originally supposed to be 3 weeks on, 1 week off, but she had to stop the first run a week early because of the effect it was having on her. They were going to start the second run with a lower dose with the hope that she’d be able to better handle it, but her white cell and neutrophil counts were too low to start back. They wanted to see if she could recover without something like neupogen shots because she doesn’t tend to handle those well, and would test again this week.
She had a blood test yesterday morning early, but we were certain that the test was done wrong. Yesterday’s blood test, a stat order, we think was left sitting for about 6 hours before they actually ran it. We hadn’t heard from the nurses, so Teri called around 3pm and the nurses called to the lab to see where the results were. They hadn’t run them yet, they suddenly sounded panicked and said “you’ll have them within the hour”. The results came back with her neutrophils dropping from 1.2 to 0.2 (2.0 is the low end of “normal”) and they said she was at super high risk for infection. They also said there was some clotting in the blood, and we believed both of those things to be related to how the lab appeared to mishandle the blood sample. The study nurses agreed, and Teri went to a different lab for another test today. This isn’t rocket science, you have a stat order, that means you do it, right?
We have concerns about how that one was handled as well, as the listed “received” at 11:40am when she was there at 9am. Found that out when the nurses called over to find where the stat order was and the lab said it hadn’t been long enough yet. From that, sounded like the sample might have been sitting for a couple of hours as well, but who knows at this point. Anyway, this test had similar numbers with her white cell count tanking, so at the doctor’s insistence she had to go immediately to get some neupogen injections. Hopefully we can get her counts up enough to get back on the meds, or we’ll have to look at doing something different for treatment.
I’m still livid about the labs, though. Two separate times, two different labs, a stat order with a 4-hour commit was ignored, even after it was confirmed with Teri and put in the system for stat handling. Doesn’t seem like it should be that hard. She’ll likely go to the oncology office for the labs tomorrow, as they have a “stat” machine in their lab upstairs so they can process it within an hour and know how things are going.
Oh Steam, you and your sales that get me to buy games…
So I get an email from Steam that one of the games on my wishlist is on sale. I’ve been wanting to play the Telltale game for “Game of Thrones”, as I’m a serious nerd when it comes to reading the books, listening to the audiobooks, and watching the show religiously. So, when I see it’s on sale for 50% off, how can I possibly say no?
Hey there, everyone!
Rather than going through and writing updates on Facebook, Google+, and Twitter, I thought I would try to create a blog that I could use for journaling. This will at least cross-post so I don’t have to remember to update each place (which I never can). There’s a lot going on right now, and I feel getting it out through a journal would be helpful to me. Teri has her CaringBridge site, but it didn’t feel right to set one up for me too. So, this will also help to keep everyone up to date on all the events going on right now in our life here in the Martin house.
It’s been a long time since I shuttered my “Geek Talks Tech” blog and stopped writing for “GeekBeat”. After Teri’s initial cancer diagnosis, a lot changed in the way I view the world and interact with it. This is kind of a work in progress, and I’m going to commit to putting up a post each day. Could be news from Teri and my battle with cancer, could be news about my kids struggles with Autism, could be talking about work, music, sharing a recording I’m working on, or the latest funny thing that happened. I’ll also be using this to consolidate some of my thoughts and ideas about things over the last 6 years for a possible future project.
Anyway, I sincerely hope you stick around! I’ll try to keep it fun 🙂